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Jill Jasmin
Jogger Jess - Hope for Huntington's
Story
On 10 January 2016 I ran the 21.1km Cadbury half-marathon in Tasmania to raise awareness and funding for the sufferers of Huntington's Disease and their families. You can find out more information about Huntington's Disease here.
Thank you so much for donating.
I met and exceeded my goal of raising $1000. These funds will be donated to Huntington's NSW and contribute to greater support and community awareness of this debilitating and often misunderstood condition.
Thank you again for your wonderful support, I could not have run the race without it. My time was 2 hours and 19 minutes, which was a great start. I look forward to improving this with further fundraising marathon events in the future!
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Huntingtons NSW ACT
Huntington’s NSW ACT develops and runs support and educational programs for people affected by Huntington’s disease (HD), a rare inherited progressive neurological disease which dramatically affects movement, emotions and cognition. Age of onset is typically 35-50 years of age. Currently, there is no cure. Each child of a person with HD has a 50% chance of developing HD.We offer therapy programs for people with HD, support groups for families, specialist support coordination for NDIS participants. We also offer a youth connection program to support young people from HD families.
Our Vision
We support people affected by Huntington’s disease to live their best life by shaping a future which is supportive, inclusive and empowered.
Our Mission
We provide leadership, support, education and advocacy to empower individuals, organisations and professionals to best meet the needs of people affected by Huntington’s disease.
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